Ethan has been up and down the last couple days. They decided a couple days ago that his infection was better. So, instead of trying to poke him so many times to get IV's in him, they were going to do another PICC (long term IV). They had to poke him a couple times to get it in, but it's in. He has also still retaining a lot of fluid lately, so they have been giving him a diarrhetic to reduce the swelling. So far, he is still swollen, but we are hoping that goes down soon. It's funny, because you look a him and it's hard to tell something that small could look "swollen".
They also decided that he may be ready to go back on the CPAP machine, so they took out the breathing tube and put it on. He wasn't responding very well to it yesterday, but since this morning he has been showing small signs of improvement. They said that if it gets worse, they will have to put the tube back in. The nurse told me last night not to be surprised if it does, but I am really hoping my Little Man it strong enough to do without it.
He is very touchy and dependent on the breathing machine, so we haven't been able to hold him lately. But he does continue to get his daily rehab and massages, and seems to love every minute.
Madaline has been doing a little better after they found her infection and started her on antibiotics. She should be on them for 7-10 days and will not be able to be fed milk while she's on them. Yesterday, they tried to get a PICC line for her. They attempted it a couple times on each arm, and couldn't get it. Her blood is thick right now and the blood vessel just bursts when they try to do it. The nurses are going to think about exploring other options, but for now, they will just have to keep poking her. And when that vein is not longer good, they will poke her again. I swear, by the time my children are out of there, they will not want to see another needle EVER again, and neither will I.
This morning when I talked to the nurse for Madaline, she said that they had decided to put her on just a Nasal Cannula. This is were they take her off the CPAP machine and just put small prongs in her nose for extra oxygen. It looks like what old people have. This is a step forward in her breathing and should be a little more comfortable for her. Plus it's easier to take pictures of her.
Pictures:
The 2 top pictures are Ethan. The first one is a picture with Brady's wedding ring around his wrist. Just a gauge of how small our Little Superman is. The next is a picture taken a couple days ago of him getting his daily therapy and massage.
The last one is just a cute picture I took of Madaline's feet. She is rubbing them together by herself which is a good sign of development.
No comments:
Post a Comment